We were able to enjoy an entire day and a half at home. We left Wednesday early afternoon. Jr was much healthier than when we went home at Xmas. All of his counts were up and no sign of fever and not nearly as much home care as the last time either, no shots thank god. He ate, he walked, he played more than he has in the last month thanks to Daddy and Logan and Lukas. Being home was excellent medicine.
This morning he had an NJ tube placed. Definition -
A nasojejunal, or NJ, tube is a small tube that is passed through the nose and guided into the jejunum (small bowel). The tube is used for feeding children who cannot or will not obtain adequate nutrition orally.
So after this round of chemo we will begin tube feeds and wean him off the TPN feeds.
Right now he is sticking his finger in jello and licking it, eating as far as we are concerned.
We have decided to omit the Vincristine from this protocol. Nasty stuff that does no good and has the worst side effects.
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