Tip of the day from one of the nurses. For children who are impossible to give oral meds to: blowing lightly in the face will help them swallow instead of spitting it out. Probably distracts them I suppose, I am willing to give it a shot.
So, we made it through 5 days of fever with the help of several antibiotics and anti fungals. We are now in protective isolation which means that any hospital personnel coming into the room must don the disposable yellow robe and gloves. The antibiotics killed some of the good bacteria leaving some of the nastier ones to proliferate into diarrhea which not even hand sanitizer can kill. It also means that Jr. cannot leave the room and that is a bummer because he actually feels well enough to go to the playroom.
His hair has begun to fall out, I was pulling out little chunks last night. I had the neurosurgeons shave his entire head when they put the shunt in so it is not so distressing. He is so fair that you cannot see the bare patches so vividly as you would with darker hair.
So in the morning we will have his second GFR which will determine how well his kidneys are working and making preparations for his next round of chemo beginning possibly this weekend. His stem cells were harvested yesterday and will be frozen until being transfused to help recover from the big, scary chemo to come.
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