I read today of yet another so-far-survivor of ATRT, I know of two that seems to have been similar to Junior. One gradutaed Kindergarten today and one had yet another clear MRI. One had radiation the same place Junior did, one has a mom who changed his diet to foods to help and opted out of radiation. I am happy that they are doing well but I am still jealous. I have a multitude of doubts about his treatment, we could have opted out of radiation, I could have changed his diet, the hospital could have started him on TPNs earlier...and on, and on. This sucks.
One thing is for sure, death is no big deal anymore. Dad and I are to the point now that we totally OK with our own mortality, who is going to get to see Junior first?
You had to make impossible decisions Ivie and I'm sure it's natural to second guess yourself but really the whole thing just SUCKS! I am so sorry!
ReplyDeletecongratulations happy life
ReplyDeleteI am so sorry for your loss. My 2.5 year old nephew just passed, 15 days after getting diagnosed with a brain tumor (10 days after finding out it was ATRT) Hugs
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