On Thursday, we arrived at CCHMC for clinic, in record time I might add. The team, onccologist, fellow, nutrition, coordinator, and social worker, and Pastor Sue (whonactually waan't there but came the next day), so we decidedon a course of action to keep Jr comfortable and with us for as long as possible. Goodbye feedung tube and hello TPNs. Yeah! Well, that nightvhe aspirated and things went very badly, siezure and into ICU with no guarantee that he would recover, and this could be IT. So after a long Adavan nap, the little bugger wakes up and is fine, a bit better than fine due to the ectra fluids.
So, how many more times are we going to go through this, not for awhile I hope. I am going to contact Make-A-Wish in SC on Monday, this little guy needs to see the mouse and god knows so do the rest of us.
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