I know it's been a long time since my last post, but we have been home. Jr is doing wonderfully. Today was his birthday, he is 3 years old. I cannot not even imagine that just 7 months ago, we were faced with the possibility that this day would never come.
So some things that have happened. His pheresis cather was removed and replaced with a PIC in his arm, much less obtrusive. He has been off TPN (total IV nutrition) for almost 2 months. His MRI and LP came back with no sign of tumor. He eats almost constantly and is growing hair back.
And last but not least, he is 3 years old, in every sense of the word. With all the joys and struggles that come with it. His time in the hospital where someone was there whenever he made the slightest moan or peep has created quite the little control freak. We are lucky that he is so easy to please.
We are starting proton radiation therapy next week in Bloomington, Indiana. It is about 3 hours away, so once again the family will be scattered. A big shout out to Nana who will have the Logan and Lukas for a couple of weeks up in Michgan.
Please pray the side effects are small and the results big!
